ECHO Autism Programs Integrate Self-Advocates’ Lived Experience
ECHO Autism communities were the first ECHO programs to incorporate “self-advocates”— people who have lived experience with a condition or issue — as program experts alongside medical specialists.
“Nothing for us or about us, without us” is their slogan; the self-advocates weigh in on everything from family and legal issues to potential prescriptions.
“I do this work with Project ECHO because I want people with disabilities to live in a better world,” says John Lemus, a self-advocate with ECHO Autism.